Tag Archives: Cowden Syndrome

Books books and more books

Pretty much all my time aside from essential things like work and making sure the kids don’t starve to death is spent revising currently. My GDL law exams are in under two weeks, my application for an LLM in Commercial Law is in, I just need to pass these darn exams.

Of course I did make it to the gym a little day, would be unthinkable otherwise. It stops me from seizing up through sitting too long. It wasn’t a major workout just 30 mins Ashtanga yoga followed by a barbell hang power clean, power clean, front squat and upright row complex x 8. Enough to feel like I moved today.

Charlotte made it into school yesterday morning but was too worn out today. She will be in for the morning tomorrow. It will take a while I think to build her back up.

Back again 

I haven’t posted in months, the Cowden syndrome diagnosis in my daughter  was such a shock I didn’t have words. Ive kept up crossfit though throughout all of this, pretty consistently really. 

Anyway progress numbers, since I started blogging in August 

Back Squat was 30kg now 65kg 1rm

Deadlift was 30kg now 77kg 1rm

Strict press was 20kg now 30kg 1rm

So definite progress, I have torn the meniscus in right knee which is problematic and I’m focusing a lot on yoga to help with it. 

Study wise I’m almost at the end of my graduate law diploma, my exams are the end of May so a huge amount of my time is focused on that. 

My daughter is still recovering from everything she’s been through, it was such a lot for someone so young. She is very unwell, exhausted, anxious and catches every bug going. I wish I could do something to help her. 

Cowden syndrome 

My daughters genetic results came back and she has cowden syndrome.  I’m devastated for her, I just don’t have words for it.

I’ve still been getting to the gym. Its just about the only time I don’t feel like crying. I’m so glad I have a programme so I can be there on my own and not have to communicate with people, that stupid “how are you?” “oh I’m good” because no one actually wants to know that my heart hurts so fucking much I could physically throw up. 

The actual programme is 3 days with the option of a 4th

Day one :-Strict press 

                    upright row

                    triceps dips

                    bicep curls 

Day two:- deadlifts 

                     front squats

                     walking lunges

                     air squats

Day three :- back squat

                        stiff leg deadlift

                         hanging knee raises

                         plank 4 x for up to 90 sec

Day four :- same as day one but push press

Today was day two, the early part of the week was appointments. It was the right thing to go today, to physically move but God I wish I had the equipment at home, I just can’t face other humans when I feel like my heart is breaking 

Rather long day

My daughters appointment was 9.40, we made it home for 2.20. No ones fault these clinics are very busy and the staff are simply trying their best. My girl is doing well, there seems to be nothing to worry about at the moment and we aren’t now due back till November. They also took blood for this terrifying genetic disorder test. 

I rushed to crossfit for 2.30 Matt very kindly fitted me in and boy did I need to move after most of the day sat down. He threw front squats at me which was a new one. Fun though as I could squat all the way down thanks to yoga. I only used 25 kg though. Then straight leg deadlifts, my last set was 45kg.

Wood walk, yoga and oncologists

As I wasn’t crossfitting today husband and I went to the woods for a walk together.

 This was followed by a restorative Ashtanga primary :- long holds, jump backs only between asana groups.
Don’t have much more to say really as tomorrow is a check up with the oncologist for my daughter.  She’s having genetic screening done as well for Cowdens. I will talk about that another time. She’s really scared and cried herself to sleep on me. I hate her going through all this. She’s only 11, it’s seriously not fair. Life is a wanker sometimes.