Cowden syndrome 

My daughters genetic results came back and she has cowden syndrome.  I’m devastated for her, I just don’t have words for it.

I’ve still been getting to the gym. Its just about the only time I don’t feel like crying. I’m so glad I have a programme so I can be there on my own and not have to communicate with people, that stupid “how are you?” “oh I’m good” because no one actually wants to know that my heart hurts so fucking much I could physically throw up. 

The actual programme is 3 days with the option of a 4th

Day one :-Strict press 

                    upright row

                    triceps dips

                    bicep curls 

Day two:- deadlifts 

                     front squats

                     walking lunges

                     air squats

Day three :- back squat

                        stiff leg deadlift

                         hanging knee raises

                         plank 4 x for up to 90 sec

Day four :- same as day one but push press

Today was day two, the early part of the week was appointments. It was the right thing to go today, to physically move but God I wish I had the equipment at home, I just can’t face other humans when I feel like my heart is breaking 

2 thoughts on “Cowden syndrome 

  1. hopeforheather

    PS. Don’t be devastated for her. There are plenty of us and just get her a good medical team to watch her well. There’s support out there. How is she doing now? I have a blog with others who are living with CS, plus links to their social media. Would you like to take a look at it?

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